Hope everyone had fun during the Holidays, I know our family did! One Ruby plus one Ronan equals a whole lot of happiness for everyone. Both Christmas and New Year's Eve were relatively relaxing holidays for us and that was just fine by me!
Ruby has been doing great. She hasn't had a cold for a week or so and that's been a big relief. Boy did we need a break form runny noses, coughs, and keeping ourselves in quarantine. It's been nice to be out and about like we usually are. We've made it to Discovery World and the Domes recently which were fun as always. Casey and Ronan joined us at the Domes, and both kiddies adored it. I really hope our babies have as much fun growing up together as we did. Every day was an adventure. :)
In other news I'm pretty sure Dan has gotten me addicted to coffee. I've always liked coffee but since we started trying to have kids I cut the habit so since then I haven't had much caffeine. But now that he's working from home there is always coffee being made and I inevitably drink some. And now I am dead to the world until I have at least two cups...bummer. I know this is not a Ruby update but I really miss being able to just wake up and go! Husbands...
But speaking of a Ruby update: GI-wise she has been...well, she's like a different child! 75% of her feeds are done as bolus feeds during the day, with the other 25% still on the pump at night. This is AMAZING! It means that she does not have to be attatched to that thing during the day, a true joy now that she is so mobile and close to walking. It's also is a sign that her reflux is under control. Last year Ruby was on the pump for 20 hours a day, being fed into her intestine, and her stomach was still vented 24/7 into a sputum trap. What a lovely name, right? So much fun to explain that one to strangers. "What's that? Oh, that's her sputum trap. Those are just her stomach juices sloshing around in there...just ignore it." Sure... Anyways, now she is fed into her tummy, and is being fed in a far more "normal" fashion. I can honestly say I never thought she would get to this point, at least not by this age. I am so happy for her, and I believe she will be off of the pump entirely in a few weeks! Yay, Ruby!!
Other than that life's been good...normal good. Sometimes happy, sometimes sad. I'm looking forward to a good year with my baby. Hopefully it will be surgery free and we won't have any major hospitalizations. So wish us luck!
What a great update on Ruby! She is doing so well you have a right to be so proud. I love the last picture in your post. What an angel. Glad to hear about the progress of her feeds. Do you have a plan to ween her off? If you need a little advice from someone who has been there let me know. Somehow my GI was never in my corner when it was time to do it with either of my girls. What is her oral intake like these days?
ReplyDeleteSorry to grill you I am just so excited to see how far Ruby has come. She is an inspiration to others who have such a hard start in life.
Take care,
Pam and Madison